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Technical The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease

Posted on 2010-04-27




Name:Technical The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease
ASIN/ISBN:0300105029
Publisher:Yale University Press 2008
Pages:288 Pages
File size:3 Mb
Publisher: Yale University Press 2008
Pages: 288 Pages
ISBN: 0300105029
File Type: PDF
File Size: 3 MB
   Technical The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease

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The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease By Alice Wexler

When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America.

Starting with the life of Phebe Hedges, Alice Wexler uses Huntington’s as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to “belong to the disease”; the emergence of Huntington’s chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease.

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